Exhaustion – Blogging Through the Alphabet

I love my kids.  I’m so blessed to have them, and I wonder every day what they’ll be like in adulthood.  I remember fondly their baby and toddlerhoods, and I love watching them grow into young adults.

But right now, I also see their challenges every day.  I see their struggles, their complaints as we go to another 6 hour day of ABA or do another Barton Reading and Spelling lesson that is difficult for them.  It’s hard for all of us.

It’s exhausting.

The Physical Exhaustion

I’ve been busy plenty of times before, but never like this.  Every week, we drive some days 2 to 2.5 hours a day.  Other days, it’s just 1.5 hours.  We burn through audio books while we burn through the miles on our nearly 15 year old minivan that has 205,000 miles on it.  Our ABA center is 45 minutes away from home.  Bookworm’s school is 20 to 30 minutes away, depending on traffic.

In the evening most of the weeknights, I get home at 5 with two of the kids and then get everything done that needs to be done–cooking, dishes, laundry, cleaning, getting the kids ready to bed, and finally, working on my freelance work.  My husband stays at the ABA center with one of our children until therapy ends at 8, and then they’re home by 8:45.  Three nights a week we split shifts like this.  On Saturday and Sunday, there is more ABA therapy.

It’s exhausting, but we’re doing this because we’re committed to helping our kids in the way we feel is best.

The Emotional Exhaustion

But the physical exhaustion is nothing compared to the mental exhaustion.  Both of our kids with autism are prone to meltdowns.

One’s meltdowns are reducing and becoming less explosive thanks to ABA.  The other one cycles through periods of maybe a week or two with no meltdowns, and then explosive meltdowns that just suck the energy out of us as parents, and I assume out of the child.

At the end of the day, when this child is finally asleep and the meltdowns are over (this child tends to have several meltdowns in a day), I find myself completely drained but unable to sleep.  I just need a long time to relax, and when I wake up, I still feel a meltdown hangover–a kind of sadness and lack of energy.

Thankfully, there are fewer meltdowns now, but because we are also get used to life without them now, when they do happen, they seem even more draining than before.

Life Considerations

Having two kids on the spectrum affects everything we do.  My husband’s contract is up for renewal, and we’re not sure if it will get renewed, so as he considers new areas of the country in which to apply for jobs, we have to carefully consider the location.  Does it have an ABA facility nearby?  If it doesn’t, we don’t even consider the location because we need our children to continue with their ABA therapy and learn alternative behaviors for some of the non-functional ones they have now.

Even though the statistics are grim–85% of people with autism and with a college degree are unemployed (Market Watch)–I have hope for my children.  They are very bright, and they are getting the help they need now to learn skills to help them fit in socially.

Life Is Improving Every Day

When I get bone weary exhausted from the state of our lives right now, I remember The Truth Bomb Mom’s encouragement to look at where we are in life as temporary.

Right now, both kids have 25 hours a week of ABA therapy. . .but they won’t always.  They will graduate from therapy, and these long, exhausting days will be just memories.

Last summer, my life was miserable.  Then, I would have said, Right now, my kids are throwing daily, raging meltdowns, sometimes multiple times a day.  Life is chaos, right now.  And you know what, that version of our lives doesn’t happen any more.  Things ARE better, and every day, little by little, they improve.

Parenting children with autism or other special needs can be exhausting.  It’s not something I like to talk about often, but it’s there.  However, my husband and I continue to believe that things will get better and that brighter days, more emotionally stable days, are ahead.

I’m participating in Blogging through the Alphabet.  You can find more blogging through the alphabet posts at Mom’s Quest to Teach.

My Blogging Through the Alphabet Special Learners edition posts:

A – What Life Was Like with Two Undiagnosed Kids with Autism

B – Using the Barton Reading & Spelling Program for Dyslexia

C – Change

D – Dyslexia

 

 

 

 

 

Homeschool Crew Review: Tied 2 Teaching

Even though PB & J Girl is a kinesthetic learner and loves hands on activities, we haven’t had the chance to use many STEM activities in our homeschool.  That changed recently when we tried out Tied 2 Teaching‘s STEM Activities, Full Year of Challenges with Close Reading.

About Tied 2 Teaching

The creator behind Tied 2 Teaching is a math teacher who teaches 4th to 8th grade.  He and his wife also homeschool three of their four children (the youngest is just a toddler).

About STEM Activities

This product came as a download and contained more then 70 challenges.  When using this product, you can choose the challenges that fit with your current homeschool curriculum, or you can choose by month.

Many of the activities are seasonal.  For instance, in March, activities include Build a Leprechaun Trap, Build a Rainbow Bridge (both for St. Patrick’s Day), New Hat for Cat Challenge (for Read Across America), and Basketball Tower.

In addition to the STEM challenges, each challenge includes Close Reading as well as questions about that reading.  For instance, in one of the Building Challenges, Build the Eiffel Tower, the Close Reading takes children to the site Wonderopolis where they can read all about how the Eiffel Tower was built.  Then, students are asked questions about the reading such as, “What are the two reasons the Eiffel Tower was built?”

The challenge itself comes next–use building blocks to build the tallest tower in 30 seconds.

There are forms for kids to fill out before actually doing the activity to include pre-planning details, and to fill out after they’ve completed the activity to state what they did and what they learned.

How We Used STEM Activities

We didn’t follow the seasonal activities and instead worked on the STEM challenges that most interested us or that related to what we were studying in our curriculum.

A favorite was the House of Cards challenge.

In this challenge, students had to build a house of cards with at least two floors using one deck of cards.

Although this sounds easy, PB & J Girl easily spent 45 minutes building her house of cards.

After watching her struggle, I decided to try myself.  I found with this kind of challenge, it’s good to be open to trying a variety of techniques and strategies.  I think that’s why I like this product so much–it encourages kids to think and act in different ways than they may be used to to solve the challenge.

In the end, PB & J Girl and I both got our house of cards built, but in two different ways.

What I loved about the challenges is that we would use them as a way to relax or unwind.  So even though she was learning, doing the activities didn’t feel like “school”.

If you want to incorporate more STEM activities in your school day or you just have a hands on learner like I do, I highly recommend this activity pack.

Keep up with Tied 2 Teaching via social media:

Facebook
Instagram
Pinterest

I was one of 70 people to review Tied 2 Teaching.  To read more reviews, click on the link below:

STEM Activities, Full Year of Challenges with Close Reading {Tied 2 Teaching Reviews}</center
Crew Disclaimer

Homeschool Crew Review: Drive Thru History® “Acts to Revelation”

One of my favorite products that I look forward to reviewing whenever it is available is anything from Drive Thru History®.  This time, we had the pleasure of reviewing Drive Thru History® "Acts to Revelation". About Drive Thru History® Drive … [Continue reading]

Books I Read Aloud to the Kids, February, 2019

In February, we continued our lull of only going to ABA three times a week, so we didn't get in quite as much reading/listening as other months.  Plus, I had a mom fail and forgot to keep track of what we read and listened to as we finished them, so … [Continue reading]

Dyslexia: Blogging through the Alphabet

When you’re teaching a young child to read and you homeschool, you’ll likely hear this piece of advice if your child is slow to learn how to read—“Don’t worry.  My child didn’t learn to read until 9 (or 10 or 11), and now he’s a voracious … [Continue reading]

Homeschool Crew Review: Art in America by ARTistic Pursuits

PB & J Girl is a kinesthetic learner, and she loves doing anything hands on when it comes to school.  She especially enjoys art, so she happily reviewed Art in America, K-3 Vol. 8, the last in the series K-3rd Grade Level, Volumes 1-8 from … [Continue reading]

Change – Blogging Through the Alphabet

Change can be scary.  What if I make a change, and it's the wrong decision?  I'm always a bit reluctant to change, but I find especially with kids with special needs, I need to be willing to change to do what is best for them. Therapy Probably … [Continue reading]

The Tattooist of Auschwitz by Heather Morris: A Book Review

Since I was a teenager, I have read many different types of Holocaust stories.  Lately, I've been reading fiction centered around the events in World War II. This post contains affiliate links. By far, one of the best I have read is Heather … [Continue reading]

Homeschool Crew Review: Victus Study Skills System

While Bookworm used to happily do his schoolwork easily every day and continue to study and learn well after school was over, once he hit puberty, that stopped.  Now that he is a 9th grader, he has slowly started to find joy in learning again, but … [Continue reading]

Using the Barton Reading & Spelling System for Dyslexia: Blogging Through the Alphabet

After I got the actual diagnosis of dyslexia for one and then two of my children, I set about finding a way to help them.  I decided even before I got the diagnosis that I would not be happy with simply giving them accommodations only.  I am an … [Continue reading]